Wow. New Blog!!!

Ok, so technically an old blog that is now revamped.  Because things change.  Life is like that.

This has been a big year for our family.  It is hard to know where to begin in explaining without writing a novel, so here is the condensed version…

At the beginning of the year, I had a mental illness as my primary mind fuck.  During the year, it became apparent that something else was really going on and I have since been diagnosed with Aspergers (which is part of Autism Spectrum Disorder, or ASD).  I have been given many names during my life, but for the first time, I have been given a name that actually fits!!!

My two sons are also on the “ASD spectrum”.

The three of us have also been officially diagnosed with Ehlers Danlos Syndrome (EDS).  EDS is a genetic condition which affects collagen production.  As collagen is the glue that holds the body together, having this condition causes all sorts of problems in some people.

Now that we all have official titles to our woes (and letters to go with them), we have been able to “get on the books” of various disability organisations, particularly Disability Services Queensland.  DSQ is a big help to us, because our case worker, S, is a bloody legend!!!  We are so lucky to have her helping us!!!  We are also in the care of another local organisation under a lovely lady, T.  T is also awesome and has been a godsend to this struggling family.  I simply can’t praise these two women enough.

So that is the very short version *grin*.  I’m still here, and still nuts 😀

Disability consumer and activist. Pissed off since 1995... Mad as a hatter since way before that.

Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal

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Pissed off since 1995. Mad as a hatter since way before that.

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SBS Insight – Psychopath

Watch Linda on SBS Insight (a bit part, and kinda embarrassing *grin*)

Autism Aspergers Magazine

Linda was a contributor for Autism Aspergers Network Magazine!

GoFundMe

We are raising money to cover the boys medical and disability expenses. ALL funds raised go into their own account, to pay for these expenses. Things such as speech therapy, occuptational therapy, psychology, chaperoned sport and social activities, and special equipment etc. I hate having to do this, but hey, if you don't like it, then give me a job ;-). Please click on the photo to go to their GoFundMe page, and thank you for your time (and I do hope, your generous donation *cheeky grin*)!!!

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Photo's of our Aspie House life!
Today was the fifth day of our little heatwave, with temperatures reaching the mid thirties again!  The heat makes me very unwell, especially as we don’t have appropriate cooling at home, but Thursday’s are my big day out, with volunteering in the morning, then going out with my support worker in the afternoon (all of which involves being in places with decent air conditioning). Today, we decided to go for a swim in the late afternoon - this was taken as we arrived at the beach.  It was surprisingly calm, considering the storms brewing all around. #HadAGreatDay #NoFilter 🏖 ❤️ Reading with my little man ❤️ #Reading #SoCute #Snuggles Having a coffee and cherry slice! #NomNom
  • Today was the fifth day of our little heatwave, with...
    Today was the fifth day of our little heatwave, with temperatures reaching the mid thirties again! The heat makes me very unwell, especially as we don’t have appropriate cooling at home, but Thursday’s are my big day out, with volunteering in the morning, then going out with my support worker in the afternoon (all of which involves being in places with decen […]
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  • ❤️ Reading with my little man ❤️ #Reading #SoCute #Snuggles
    ❤️ Reading with my little man ❤️ #Reading #SoCute #Snuggles
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