The Down, The Bad and The Downright Ugly

I’m pissed off.  I’m really REALLY pissed off.  The Universe can kiss my fat hairy arse.

But before I get into that, I need you to know that this will get ugly.  And personal.  And detailed.  I will write things about my bodily functions that will make you wish you were illiterate.

So if you’re eating, or planning to any time soon, stop reading.  Maybe it would be best if you didn’t return to this post at all.

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The story starts this evening.  I have rectocele.  The link goes into some general detail, but for me, it means that I have a “pocket” in my rectum that protrudes into my vagina and therefore, stool gets caught there.  It can be “eased” out (and trust me, there’s nothing “easy” about it!) by putting a finger up my twat and pushing back.  Which I just did.  It took about fifteen minutes to go to the toilet.  Yay for me.  This was a good day as far as that goes.

My “pocket” isn’t large enough yet to protrude from my vagina and say “peek a boo” to the outside world yet, but it’s getting awfully close.  I’m hoping it will last out until the surgery required to fix it actually has more of a success rate than a failure rate.

So for now, I suck it up (figuratively speaking), and let my fingers do the walking as required.

Here’s the thing.  Here is where the universe not only fucks me in the arse (literally speaking in a sense) with my pants on, but laughs maniacally while it does it.

I have Ehlers Danlos Syndrome.  So every time I need my “fingers to do the walking”, I partially dislocate the fuckers.

Yeah, like having rectocele in the first place isn’t enough to deal with.

So Universe?  Fuck you right back!

You can take your EDS and shove up right up there where the sun doesn’t shine buddy.  Take your dysautonomia and your months of not being able to do shit because I’m too “whacked out” from the heat of summer, and fuck yourself with it sideways.  You can shove your bloated stomach and the pain that comes with it and swallow that fucker whole and I hope you choke!  You can take your dislocations and muscle pains and myoclonic jerks and rotate on them any damn way that pleases you.  You might make it hard to breathe and give me chest pains, but I will out-breathe you until the end of time mother fucker.  Losing my sight?  Pfft.  Child’s play.  The hundreds of other things you are doing to my body will pale in fucking comparison to the shit that I will reign down on YOUR pathetic arse.

In case you hadn’t noticed dear Universe – I’m all out of fucking gum!

So bring it the fuck on.

Ohhhhh, and just so that we’re all clear here… this applies to any fucking human that DARES try to tell me in some passive aggressive bullying way (and it IS bullying you dumb shit), that I need to stop complaining and suck it up.  Such as using phrases like “well, I choose to go out and work/live/have fun/etc”.  Good for fucking you.  If you can do those things, then you have no fucking idea what I go through, so either admit that and carry a conversation like a normal human being, or shut the fuck up.  And stop pretending you’re a fucking “voice”.  To be a “voice” your ears have to be bigger than your mouth, and your compassion has to be bigger than both combined.  And to be a friend, or hell, let’s aim lower and just go for “human”, you don’t have to go through it, or even get it.  But you have to be honest and you have to stop the condescending passive aggressive bullying bullshit.

OK, so writing that here is also passive aggressive and I’ll cop to that.  I have no desire to say that to anyone’s face, because even though that’s how I feel, I realise that that is how *I* feel.  It’s possible s/he doesn’t realise what effect their words have.  I’m giving them the benefit of the doubt.  I went through this shit with them months ago, but this morning, I saw them do it to someone else on a blog (completely unrelated to me), and while I’m telling the universe to fuck off, I thought I’d vent a little about this too.  Maybe they need to hear it – but they don’t need to hear it like that.  And I don’t know how to be tactful about it any more than I already have been – which obviously hasn’t worked.

Typing it out has done me some good though.  I’m feeling much less tense now.

I don’t like being negative.  I really don’t.  But I guess I figure – I can’t complain that people don’t get it if I don’t explain it to them.  So here I am – explaining.  In my own way 🙂

Disability consumer and activist. Pissed off since 1995... Mad as a hatter since way before that.

Tagged with: ,
Posted in Disability, Ehlers Danlos Syndrome, Personal
13 comments on “The Down, The Bad and The Downright Ugly
  1. Way to blow off some steam at the universe. That is how it is done!

  2. Luna Blue says:

    I really need to learn to “explain” like you do……..its so awesome *grin*. Oh and your little discussion with the universe had me grinning from ear to ear, It was just perfect. Seriously though I shall keep you in my thoughts and although its not much, perhaps in a tiny way it might help a little bit.

  3. Mark kent says:

    feeling sorry for your self. YOU ARE ALIVE, …. I.. have aspergers. i have M.E. very painful most times .can put me in a wheelchair, i have bladder and bowel problems.YES, people see laugh call very bad names. by YOU talking you are helping others, mark Date: Tue, 15 Oct 2013 15:10:48 +0000 To: mkentdad12@outlook.com

  4. addercatter says:

    Yes!!! Everything you said!!! (Except the rectocele part… that hasn’t happened to me… yet. Although I do have to disempact myself almost on a daily basis. Does that count?)

  5. CPTSD is such a joy says:

    WTG Linda. Tell it like it is.
    The comments of the sheeple who tell any of us to grow a pair, I wish them one day in our shoes.
    The crap we have to deal with is beyond their possibility to grasp.
    So good for you!

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Pissed off since 1995. Mad as a hatter since way before that.

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Photo's of our Aspie House life!
Maxie 😺 sleeping on my stomach... Which she has been doing non stop for two months now!!! Cats know shit!!! 😳😻 So, I’ve been unusually quiet lately... Needed to talk to family first... I have grown a granuloma thing near my belly button, that’s also causing a dent in my stomach, and despite testing, doc doesn’t know why. One thing led to another, and now I’ve ended up in the “testing for cancer” stage. Stomach has been ruled out. I need the hospital to stop losing my referrals so I can find out about bowel. Something is definitely wrong, obviously things are more complicated than one can write about on social media, but hopefully it’s just one of those pain in the arse things (😂) that isn’t actually fatal. All of this had a little bit to do with our “LET’S GO ON A FUCKING CRUISE - OR TWO!!!” bent 😂 So if you’re wondering about that, this is one reason why we have decided this trip is so important. And no, we are not paying for all of it from our measly pension. Nor are we doing anything illegal, or starving our children. Apparently, people were wondering??? 😆 So that’s my latest. I’ve been quiet because I’ve been really fucking sick 🤢 and sleeping 😴 for 18 hours a day every chance I get. And I’ve prioritised a trip 🛳 (plus a dry run trip 🛳), that incorporates a lot of our family’s bucket list to do’s because we’ve been reminded life isn’t forever ❤️
Up at Gympie today, visiting Nanna. And swimming...
Quinn made Gyoza 🥟 today for dinner!!! I taught E how to combine it all, and BJ cooked it, but Quinn and E made them! So proud of him. It’s a huge deal for him to sit that long. ❤️
  • Maxie 😺 sleeping on my stomach… Which she has been doing...
    Maxie 😺 sleeping on my stomach… Which she has been doing non stop for two months now!!! Cats know shit!!! 😳😻 So, I’ve been unusually quiet lately… Needed to talk to family first… I have grown a granuloma thing near my belly button, that’s also causing a dent in my stomach, and despite testing, doc doesn’t know why. One thing led to another, and now I’ve ende […]
  • Up at Gympie today, visiting Nanna. And swimming… (at...
    Up at Gympie today, visiting Nanna. And swimming… (at Gympie Aquatic Centre) https://www.instagram.com/p/B2Yib31Bf3t/?igshid=2ylkmb3ba2x2
  • Quinn made Gyoza 🥟 today for dinner!!! I taught E how to...
    Quinn made Gyoza 🥟 today for dinner!!! I taught E how to combine it all, and BJ cooked it, but Quinn and E made them! So proud of him. It’s a huge deal for him to sit that long. ❤️ https://www.instagram.com/p/B2OY_FPhUrI/?igshid=rfw2k8ep2p03
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