Is There Any Point To Being Diagnosed As An Adult? (and a thing or two about executive functioning and routines)…

Quite often, I read someone asking whether it’s worth being assessed for Autism as an adult.  Given that services for children are rare enough, it all seems too much bother for some people considering there will be no help at the end of it anyway.  And if you are dead set certain that you have Autism, then this might well be the case – that there is no point to being diagnosed.

If there is any doubt whatsoever however, here is a little story that may convince you that being diagnosed, is indeed, worth the time, money, and trouble.

Yesterday I had an epiphany of sorts.  My husband and I were driving along and we were trying to use the child free time to sort out a few issues we were having, including things to do with our current routine.  I was thinking about our routine, and routines in general and my thoughts started wandering to all sorts of places to do with routines, and suddenly I grabbed my husbands arm and said “I have Autism!”

“Huh?”

“I have Autism!  Of course!  That is why this is so fucking hard!”

My husband just gave a slight nod and waited for me to continue.  He is such a patient man lol.

Our family routine, quite frankly, sucks.  We currently have no support, so we triage what we need to do.  Food, water, baths, school.  Anything else is a bonus.  I have a nice routine filled with some extra bits on the wall, but that is basically a pipe dream.  Still, we do have to do better, and I have been trying to figure out a way to do that.

The problem is, I realised last night, that I have thinking about this whole issue from the neurotypical point of view.  Find a problem.  Fix it.  Done.

Yeah, well, my brain doesn’t work like that.  It’s not that I’m lazy or not motivated to do better.  It’s that my brain doesn’t work like that.

At night, I have a routine of my own.  I have dinner once the boys are in bed, watch some television, and then go to bed myself.  That is my routine.  If my routine is out even a little, it feels bad.  It makes me cranky.  It’s like… my body telling me that something is wrong with the universe, and while I can not articulate what might happen, whatever it is, it isn’t good.  This routine must be kept.

Unless I’m not home at all, in which case, it’s fine.  (This explains why new routines for new jobs etc has always been easy – the different environment means new routines are fine).

I am quite educated to the concept that changing routines for children on the spectrum can be hard, even somewhat impossible at times.  Small changes must be made.  A child with Autism must be given time and space to acclimatise to any changes.  Why then did I not consider that the same applies to me?

As pathetic as our routine is, it is a routine.  Changing it is going to be hard, if not somewhat impossible, if we try to do it all at once.  What we need, is gradual change.  Small increments.

An adult with Autism is still a person with Autism.  The same rules apply.  I’m not lazy.  I am most certainly motivated.  I have Autism.

And this is why having a diagnosis can be a great thing.  It allows us the knowledge we need to not only be a little easier and less judgmental on ourselves when things don’t quite go to plan, however it also allows us to use the same tools as our kids so that we too, can navigate this world which isn’t quite meant for us.

Disability consumer and activist. Pissed off since 1995... Mad as a hatter since way before that.

Posted in Autism, Disability
One comment on “Is There Any Point To Being Diagnosed As An Adult? (and a thing or two about executive functioning and routines)…
  1. Desiree says:

    This is concisely put and contains volumes of validation.Thank you.

Please feel free to comment...

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Pissed off since 1995. Mad as a hatter since way before that.

Topics I Write About
Follow Linda Mad Hatter on WordPress.com

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 620 other followers

SBS Insight – Psychopath

Watch Linda on SBS Insight (a bit part, and kinda embarrassing *grin*)

Autism Aspergers Magazine

Linda was a contributor for Autism Aspergers Network Magazine!

GoFundMe

We are raising money to cover the boys medical and disability expenses. ALL funds raised go into their own account, to pay for these expenses. Things such as speech therapy, occuptational therapy, psychology, chaperoned sport and social activities, and special equipment etc. I hate having to do this, but hey, if you don't like it, then give me a job ;-). Please click on the photo to go to their GoFundMe page, and thank you for your time (and I do hope, your generous donation *cheeky grin*)!!!

LindaMadHatter at FaceBook

Click the image and follow me on FB!

Photo's of our Aspie House life!
I leave my bed for five minutes!!! #CatsLife Shopping for colouring supplies for everyone, then out for lunch... #FamilyDay #AllTheLove Q - "Daddy, what are you doing?" (as he spins the other wheel in the air as the chair is on it's side)...
Dad - "Turning Mummy's chair into a fidget spinner!"
#FunnyFucker 😂
Versatile Blogger Award
Awesome Blossom Award
%d bloggers like this: