Quite often, I am told (in one way or another), to “accept” my Ehlers Danlos…
At least, fuck that in the way that most people mean “accept”. Most people (usually those without a disability of their own, but also quite a few with other disabilities who do not know what it’s like to have EDS, or who do not know what it’s like to have EDS like I do), usually mean “accept” as in – this is how it is, and if you are negative about it then you can’t live a good life.
What crap. Of course you can. EDS for me means pain. 24/7 sometimes so bad you want to die, pain. It means a life spent largely on my recliner, whether I want to be here or not. It means a lot of stuff which has no positive side whatsoever.
It is ok for me to hate those parts. It is ok for me to be pissed off that I have to put up with those parts. It is ok for me to curse the fact that those parts exist. I am allowed to be tired and frustrated and over it all.
Those parts are not all of who I am. If you see those parts, then you are only seeing a tiny fraction of who I am. I am strong, and funny, and cute and kind and I love life in ways you can’t even begin to imagine unless you know me well. I am a warrior woman, and I will defy odds that will blow your mind. I am complex beyond belief, and I make no apologies for it.
I don’t like being disabled. That does not mean I do not like me, or that I do not like life or that I suck in any way. If that is all you see of me, then it is YOU who is being lazy and not looking hard enough.