I haven’t been online much. Between my husband’s heart attack and hospital visits and my own hospital visits, and various other things going on, I’ve simply lost my mind. Possibly it fell under the couch, or maybe I left it…
Blog Archives
Personal Update #13 – Bikers For Autism Australia and Hospital Episode
Tagged with: ASC, ASD, Aspergers, Aspie, Autism, Bikers, Biking, Charity, EDS, Ehlers Danlos Syndrome, Heart Attack, Hospital, kids, Parenting, Procedures, Ride, Rides, Sick, Specialists, Tired
Posted in Autism, Disability, Education, Ehlers Danlos Syndrome, Mental Health, Personal
Posted in Autism, Disability, Education, Ehlers Danlos Syndrome, Mental Health, Personal
Wheelchairs – To Touch Or Not To Touch?
Ah… the good old wheelchair debate… to touch or not to touch the chair? And if it’s OK to touch, then when and how is it acceptable? It seems to be a question hanging around social media of late, so…
Tagged with: Rules, Touching Wheelchairs, wheelchair, Wheelchair Social Graces, Wheelchairs
Posted in Disability, Ehlers Danlos Syndrome
Posted in Disability, Ehlers Danlos Syndrome
Hips That Aren’t Made For Walking…
I wrote on Facebook yesterday that I had given up. That I was done. That I may explain that statement in a blog post. This is not that blog post. This is another one. Something unrelated happened yesterday that I…
Tagged with: Aspergers, Autism, Dislocation, EDS, Ehlers Danlos Syndrome, Hips
Posted in Autism, Disability, Ehlers Danlos Syndrome, Personal
Posted in Autism, Disability, Ehlers Danlos Syndrome, Personal
Personal Update #12
Ok, so maybe it’s not number 12. Maybe it’s my first ever personal update. I’m not sure. I have had this blog for years and I am too tired right now to go through all my posts to…
Tagged with: Personal Update
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Triaging – Distinguishing Between the Want and the Need
A couple of months ago, things in our apartment home went all FUBAR (Fucked Up Beyond All Recognition). It wasn’t pretty. There was much crying, and many phone calls – most of which I suspect, didn’t even involve my being…
Tagged with: A list of my wants.
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Diary – Sydney Trip
So I went to Sydney *hugest grin eva!!!* I love to travel. Since becoming disabled and having NO money, the whole travel thing has just gone out of the window. I wanted to take my kids travelling all the time,…
Tagged with: Appearing on SBS Insight!
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
The Little Things That Matter
After going through all we have in order to move somewhere with a pool, so that the kids and I can exercise and try to keep EDS at bay as much as possible, I realised that it had been over…
Tagged with: A short conversation with a stranger about going back to work...
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Parenting with a Disability – QLD Gov Issue
Parenting with a disability. There are issues for disabled parents that normal parents don’t consider, understand, or even know about. It is a whole different sub-set of parenting, much like being a single parent has its issues that other parents…
Disability Free December – the second!
Last year, I came up with a concept – Disability Free December. After a year of diagnosis, and therapy, and medical professionals, and research – I had had enough! I wanted time off from “being disabled and sick”. So I…
Tagged with: Disability Free December
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Watch Linda on SBS Insight (a bit part, and kinda embarrassing *grin*)
Linda was a contributor for Autism Aspergers Network Magazine!
Click the image and follow me on FB!
- 🥳Happy Birthday🥳
To my dearest Quinn, who turns eleven today❣️...🥳Happy Birthday🥳 To my dearest Quinn, who turns eleven today❣️ You are the light of my life 💡 My cheeky little monkey 🐒 The greatest giver of hugs and kisses 😘 You are all the colours of the rainbow 🌈, and so much more!!! (at Sizzlers Dinner) https://www.instagram.com/p/B5FUUvzhrlZxEkutSlWVRmRuVZ83_7Aw_EclxU0/?igshid=5q0jsk9hyyhv
- Getting the royal treatment at Extended Day Surgery. Big bed...Getting the royal treatment at Extended Day Surgery. Big bed and own room!!! (at Sunshine Coast University Hospital) https://www.instagram.com/p/B4tFen3BSPfDJnUnk6R-j1TYsePMk_Dd3MZk100/?igshid=jq9c3a59y4t5
- When Quinn and I got back to the apartment earlier, this bird...When Quinn and I got back to the apartment earlier, this bird was here, preening. Hours later, it’s still here, head tucked in, and I’d say, in for the night ❤️ 🐦 💤 https://www.instagram.com/p/B4NEGajBjH5/?igshid=eywc1q4js954
- Dinner out with Quinn @pappardelles_kingsbeach Awesome wood...Dinner out with Quinn @pappardelles_kingsbeach Awesome wood fired pizza! (at Kings Beach - Caloundra - Sunshine Coast) https://www.instagram.com/p/B4MffOtBE5K/?igshid=18bkicqf40k1g
- Having a one-on-one day with my youngest special man. Swimming,...Having a one-on-one day with my youngest special man. Swimming, beaching, rock climbing, and playing in the waterpark. Next, we’re going out for dinner. ❤️ (at Kings Beach - Caloundra - Sunshine Coast) https://www.instagram.com/p/B4MPh5tBCG9/?igshid=ziok0ffgprnr
Let’s Talk About Assumptions
There are a lot of assumptions around when it comes to disability. Some of them slap you in the face, like when the worker from Blue Care compared me to a 90 year old (I don’t need help as much…
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health