Blog Archives

Personal Update #13 – Bikers For Autism Australia and Hospital Episode

I haven’t been online much.  Between my husband’s heart attack and hospital visits and my own hospital visits, and various other things going on, I’ve simply lost my mind.  Possibly it fell under the couch, or maybe I left it

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Posted in Autism, Disability, Education, Ehlers Danlos Syndrome, Mental Health, Personal

Wheelchairs – To Touch Or Not To Touch?

Ah… the good old wheelchair debate… to touch or not to touch the chair?  And if it’s OK to touch, then when and how is it acceptable?  It seems to be a question hanging around social media of late, so

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Posted in Disability, Ehlers Danlos Syndrome

Hips That Aren’t Made For Walking…

I wrote on Facebook yesterday that I had given up.  That I was done.  That I may explain that statement in a blog post.  This is not that blog post.  This is another one. Something unrelated happened yesterday that I

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Personal

Personal Update #12

    Ok, so maybe it’s not number 12.  Maybe it’s my first ever personal update.  I’m not sure.  I have had this blog for years and I am too tired right now to go through all my posts to

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal

Triaging – Distinguishing Between the Want and the Need

A couple of months ago, things in our apartment home went all FUBAR (Fucked Up Beyond All Recognition).  It wasn’t pretty.  There was much crying, and many phone calls – most of which I suspect, didn’t even involve my being

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal

Diary – Sydney Trip

So I went to Sydney *hugest grin eva!!!* I love to travel.  Since becoming disabled and having NO money, the whole travel thing has just gone out of the window.  I wanted to take my kids travelling all the time,

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal

The Little Things That Matter

After going through all we have in order to move somewhere with a pool, so that the kids and I can exercise and try to keep EDS at bay as much as possible, I realised that it had been over

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Pissed off since 1995. Mad as a hatter since way before that.

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