I haven’t been online much. Between my husband’s heart attack and hospital visits and my own hospital visits, and various other things going on, I’ve simply lost my mind. Possibly it fell under the couch, or maybe I left it…
Blog Archives
Personal Update #13 – Bikers For Autism Australia and Hospital Episode
Tagged with: ASC, ASD, Aspergers, Aspie, Autism, Bikers, Biking, Charity, EDS, Ehlers Danlos Syndrome, Heart Attack, Hospital, kids, Parenting, Procedures, Ride, Rides, Sick, Specialists, Tired
Posted in Autism, Disability, Education, Ehlers Danlos Syndrome, Mental Health, Personal
Posted in Autism, Disability, Education, Ehlers Danlos Syndrome, Mental Health, Personal
Wheelchairs – To Touch Or Not To Touch?
Ah… the good old wheelchair debate… to touch or not to touch the chair? And if it’s OK to touch, then when and how is it acceptable? It seems to be a question hanging around social media of late, so…
Tagged with: Rules, Touching Wheelchairs, wheelchair, Wheelchair Social Graces, Wheelchairs
Posted in Disability, Ehlers Danlos Syndrome
Posted in Disability, Ehlers Danlos Syndrome
Hips That Aren’t Made For Walking…
I wrote on Facebook yesterday that I had given up. That I was done. That I may explain that statement in a blog post. This is not that blog post. This is another one. Something unrelated happened yesterday that I…
Tagged with: Aspergers, Autism, Dislocation, EDS, Ehlers Danlos Syndrome, Hips
Posted in Autism, Disability, Ehlers Danlos Syndrome, Personal
Posted in Autism, Disability, Ehlers Danlos Syndrome, Personal
Personal Update #12
Ok, so maybe it’s not number 12. Maybe it’s my first ever personal update. I’m not sure. I have had this blog for years and I am too tired right now to go through all my posts to…
Tagged with: Personal Update
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Triaging – Distinguishing Between the Want and the Need
A couple of months ago, things in our apartment home went all FUBAR (Fucked Up Beyond All Recognition). It wasn’t pretty. There was much crying, and many phone calls – most of which I suspect, didn’t even involve my being…
Tagged with: A list of my wants.
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Diary – Sydney Trip
So I went to Sydney *hugest grin eva!!!* I love to travel. Since becoming disabled and having NO money, the whole travel thing has just gone out of the window. I wanted to take my kids travelling all the time,…
Tagged with: Appearing on SBS Insight!
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
The Little Things That Matter
After going through all we have in order to move somewhere with a pool, so that the kids and I can exercise and try to keep EDS at bay as much as possible, I realised that it had been over…
Tagged with: A short conversation with a stranger about going back to work...
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Watch Linda on SBS Insight (a bit part, and kinda embarrassing *grin*)
Linda was a contributor for Autism Aspergers Network Magazine!
Click the image and follow me on FB!
- Maxie 😺 sleeping on my stomach… Which she has been doing...Maxie 😺 sleeping on my stomach… Which she has been doing non stop for two months now!!! Cats know shit!!! 😳😻 So, I’ve been unusually quiet lately… Needed to talk to family first… I have grown a granuloma thing near my belly button, that’s also causing a dent in my stomach, and despite testing, doc doesn’t know why. One thing led to another, and now I’ve ende […]
- Up at Gympie today, visiting Nanna. And swimming… (at...Up at Gympie today, visiting Nanna. And swimming… (at Gympie Aquatic Centre) https://www.instagram.com/p/B2Yib31Bf3t/?igshid=2ylkmb3ba2x2
- Quinn made Gyoza 🥟 today for dinner!!! I taught E how to...Quinn made Gyoza 🥟 today for dinner!!! I taught E how to combine it all, and BJ cooked it, but Quinn and E made them! So proud of him. It’s a huge deal for him to sit that long. ❤️ https://www.instagram.com/p/B2OY_FPhUrI/?igshid=rfw2k8ep2p03
- Enjoying a second date night - ever - with my husband.
Every...Enjoying a second date night - ever - with my husband. Every time we start necking, my watch goes off telling me my heart rate is too high 😂 (at Mooloolaba Beach) https://www.instagram.com/p/B0a7LI0BVh-/?igshid=2ujnf692eow3
- Quinn built her a luxury home, however it is being renovated. ...Quinn built her a luxury home, however it is being renovated. An additional room will be added by way of tunnel. In the meantime, apparently the tunnel parts make a great bed! 😂 #TypicalCat https://www.instagram.com/p/Bx1ClEaBUNu/?igshid=1eyw0in8tttua
