I haven’t been online much. Between my husband’s heart attack and hospital visits and my own hospital visits, and various other things going on, I’ve simply lost my mind. Possibly it fell under the couch, or maybe I left it…
I haven’t been online much. Between my husband’s heart attack and hospital visits and my own hospital visits, and various other things going on, I’ve simply lost my mind. Possibly it fell under the couch, or maybe I left it…
Ah… the good old wheelchair debate… to touch or not to touch the chair? And if it’s OK to touch, then when and how is it acceptable? It seems to be a question hanging around social media of late, so…
I wrote on Facebook yesterday that I had given up. That I was done. That I may explain that statement in a blog post. This is not that blog post. This is another one. Something unrelated happened yesterday that I…
Ok, so maybe it’s not number 12. Maybe it’s my first ever personal update. I’m not sure. I have had this blog for years and I am too tired right now to go through all my posts to…
A couple of months ago, things in our apartment home went all FUBAR (Fucked Up Beyond All Recognition). It wasn’t pretty. There was much crying, and many phone calls – most of which I suspect, didn’t even involve my being…
So I went to Sydney *hugest grin eva!!!* I love to travel. Since becoming disabled and having NO money, the whole travel thing has just gone out of the window. I wanted to take my kids travelling all the time,…
After going through all we have in order to move somewhere with a pool, so that the kids and I can exercise and try to keep EDS at bay as much as possible, I realised that it had been over…
Parenting with a disability. There are issues for disabled parents that normal parents don’t consider, understand, or even know about. It is a whole different sub-set of parenting, much like being a single parent has its issues that other parents…
Last year, I came up with a concept – Disability Free December. After a year of diagnosis, and therapy, and medical professionals, and research – I had had enough! I wanted time off from “being disabled and sick”. So I…
Let’s Talk About Assumptions
There are a lot of assumptions around when it comes to disability. Some of them slap you in the face, like when the worker from Blue Care compared me to a 90 year old (I don’t need help as much…
Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health