Blog Archives

Personal Update #13 – Bikers For Autism Australia and Hospital Episode

I haven’t been online much.  Between my husband’s heart attack and hospital visits and my own hospital visits, and various other things going on, I’ve simply lost my mind.  Possibly it fell under the couch, or maybe I left it

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Posted in Autism, Disability, Education, Ehlers Danlos Syndrome, Mental Health, Personal

Wheelchairs – To Touch Or Not To Touch?

Ah… the good old wheelchair debate… to touch or not to touch the chair?  And if it’s OK to touch, then when and how is it acceptable?  It seems to be a question hanging around social media of late, so

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Posted in Disability, Ehlers Danlos Syndrome

Hips That Aren’t Made For Walking…

I wrote on Facebook yesterday that I had given up.  That I was done.  That I may explain that statement in a blog post.  This is not that blog post.  This is another one. Something unrelated happened yesterday that I

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Personal

Personal Update #12

    Ok, so maybe it’s not number 12.  Maybe it’s my first ever personal update.  I’m not sure.  I have had this blog for years and I am too tired right now to go through all my posts to

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal

Triaging – Distinguishing Between the Want and the Need

A couple of months ago, things in our apartment home went all FUBAR (Fucked Up Beyond All Recognition).  It wasn’t pretty.  There was much crying, and many phone calls – most of which I suspect, didn’t even involve my being

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal

Diary – Sydney Trip

So I went to Sydney *hugest grin eva!!!* I love to travel.  Since becoming disabled and having NO money, the whole travel thing has just gone out of the window.  I wanted to take my kids travelling all the time,

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal

The Little Things That Matter

After going through all we have in order to move somewhere with a pool, so that the kids and I can exercise and try to keep EDS at bay as much as possible, I realised that it had been over

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal
Pissed off since 1995. Mad as a hatter since way before that.

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Photo's of our Aspie House life!
Maxie 😺 sleeping on my stomach... Which she has been doing non stop for two months now!!! Cats know shit!!! 😳😻 So, I’ve been unusually quiet lately... Needed to talk to family first... I have grown a granuloma thing near my belly button, that’s also causing a dent in my stomach, and despite testing, doc doesn’t know why. One thing led to another, and now I’ve ended up in the “testing for cancer” stage. Stomach has been ruled out. I need the hospital to stop losing my referrals so I can find out about bowel. Something is definitely wrong, obviously things are more complicated than one can write about on social media, but hopefully it’s just one of those pain in the arse things (😂) that isn’t actually fatal. All of this had a little bit to do with our “LET’S GO ON A FUCKING CRUISE - OR TWO!!!” bent 😂 So if you’re wondering about that, this is one reason why we have decided this trip is so important. And no, we are not paying for all of it from our measly pension. Nor are we doing anything illegal, or starving our children. Apparently, people were wondering??? 😆 So that’s my latest. I’ve been quiet because I’ve been really fucking sick 🤢 and sleeping 😴 for 18 hours a day every chance I get. And I’ve prioritised a trip 🛳 (plus a dry run trip 🛳), that incorporates a lot of our family’s bucket list to do’s because we’ve been reminded life isn’t forever ❤️
Up at Gympie today, visiting Nanna. And swimming...
Quinn made Gyoza 🥟 today for dinner!!! I taught E how to combine it all, and BJ cooked it, but Quinn and E made them! So proud of him. It’s a huge deal for him to sit that long. ❤️
  • Maxie 😺 sleeping on my stomach… Which she has been doing...
    Maxie 😺 sleeping on my stomach… Which she has been doing non stop for two months now!!! Cats know shit!!! 😳😻 So, I’ve been unusually quiet lately… Needed to talk to family first… I have grown a granuloma thing near my belly button, that’s also causing a dent in my stomach, and despite testing, doc doesn’t know why. One thing led to another, and now I’ve ende […]
  • Up at Gympie today, visiting Nanna. And swimming… (at...
    Up at Gympie today, visiting Nanna. And swimming… (at Gympie Aquatic Centre) https://www.instagram.com/p/B2Yib31Bf3t/?igshid=2ylkmb3ba2x2
  • Quinn made Gyoza 🥟 today for dinner!!! I taught E how to...
    Quinn made Gyoza 🥟 today for dinner!!! I taught E how to combine it all, and BJ cooked it, but Quinn and E made them! So proud of him. It’s a huge deal for him to sit that long. ❤️ https://www.instagram.com/p/B2OY_FPhUrI/?igshid=rfw2k8ep2p03
  • Enjoying a second date night - ever - with my husband. Every...
    Enjoying a second date night - ever - with my husband. Every time we start necking, my watch goes off telling me my heart rate is too high 😂 (at Mooloolaba Beach) https://www.instagram.com/p/B0a7LI0BVh-/?igshid=2ujnf692eow3
  • Quinn built her a luxury home, however it is being renovated. ...
    Quinn built her a luxury home, however it is being renovated. An additional room will be added by way of tunnel. In the meantime, apparently the tunnel parts make a great bed! 😂 #TypicalCat https://www.instagram.com/p/Bx1ClEaBUNu/?igshid=1eyw0in8tttua
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