Blog Archives

A Word On Feeling Sorry For Yourself (and why I LOVE my friends!)

Or “myself” as the case may be. I have regularly been accused of feeling sorry for myself.  It seems that any time you speak of a negative experience, some idiot who believes that the only way forward is light and

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal

The Down, The Bad and The Downright Ugly

I’m pissed off.  I’m really REALLY pissed off.  The Universe can kiss my fat hairy arse. But before I get into that, I need you to know that this will get ugly.  And personal.  And detailed.  I will write things

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Posted in Disability, Ehlers Danlos Syndrome, Personal

Mental Health Support Plans – Ugh!

Now I’m just me.  A nobody.  Worse, a nobody stuck in a place that is nowhere. But I’m hoping this will catch on.  I’m hoping that one day, all mental health support plans will look like this –  which is

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health

All Spaced Out

I just walked from my room, where I was trying to rest, into the lounge room (which is open plan with the kitchen and dining room) and it hit me exactly WHY I feel like shit most of the time. 

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal

Hard Days

I posted this earlier on FaceBook (AspieHouse) So if you have ever wondered what having Aspergers has to do with Ehlers Danlos Syndrome and why don’t I just have two different pages??? Here is your answer… I can’t separate the

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Personal

Disability Care and Being Cautious….

Disability Care has been voted on and Australians all over are rejoicing in the news that everyone with a disability will have their needs met by 2020.  It is indeed, fantastic news, and Australians have every right to not only

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health

Aftermath of Rape and Disability

She sits there, dumbfounded.  Was she really just raped?  By her boyfriend no less, in their bedroom, five feet from where her flatmates were watching television?  Was it rape?  Sure, they were playing games, but when it hurt and she

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health

Whose Voice Are We Really Hearing?

I had the opportunity to be a media whore a while back… and I said no.  I don’t want it.  I mean, yeah, the attention would be great and blah blah blah, but at the end of the day –

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Posted in Autism, Disability, Ehlers Danlos Syndrome, Mental Health, Personal

Diary – 6th July 2013

So… After weeks of trying to get to the hairdressers – and failing miserably – I’ve cut all my hair off at home. Clippers, 18mm, all over. It looks terrible – the worst sort of bogan. I just can’t pull

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Posted in Disability, Ehlers Danlos Syndrome, Personal

The Positive Side to Chronic Illness and Disability

This is a picture my son, Nicky, took of me when he was five.  I love it!!! This picture was taken at 10:56am, on a Saturday.  If I had been working full time at this stage of my life, then

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Posted in Disability, Ehlers Danlos Syndrome, Personal
Pissed off since 1995. Mad as a hatter since way before that.

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